Self-harm
Self-harm is when somebody intentionally hurts themselves. It is often a way to express or deal with distress. Self-harm can affect anyone at any age but is more common in young people. A lack of research means we do not know how many autistic people self-harm. Self-harm can significantly affect your physical and mental health, so it is important to get help as early as possible.
What is self-harm?
The NHS describes self-harm as follows:
'Self-harm is when somebody intentionally damages or injures their body. Self-harm is most often described as a way to express or cope with emotional distress.'
Warning:
It can be upsetting and potentially triggering to read information about how to self-harm. If you are feeling vulnerable at the moment, you might not want to read the information below.
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People may use one or more ways to self-harm. They may do it once or twice, or more regularly. There may be many different reasons why people self-harm and some people may not know why they self-harm. Some reasons may include:
- cutting themselves
- biting themselves
- picking or scratching at their skin (in order to feel/experience pain)
- burning their skin
- hitting themselves or walls (in order to feel/experience pain)
- pulling their hair
- poisoning themselves.
People may use one or more ways to self-harm. They may do it once or twice, or more regularly. There may be many different reasons why people self-harm and some people may not know why they self-harm. Reasons may include:
- dealing with intense feelings or distress
- trying to feel in control
- self-punishment
- wanting to feel something when emotionally numb.
What are the signs of self-harm?
The signs of self-harm can be hard to see if the person hides them. Any changes in mood, habits and behaviour might be a key indication. Signs can include:
- keeping fully covered around others
- unexplained injuries, usually on the wrists, arms, thighs and chest
- unexplained blood stains on clothing or tissues
- signs of pulling out hair
- signs of low self-esteem and becoming very withdrawn
- avoiding activities where they have to change clothing, such as swimming
- expressing feelings of failure, uselessness, or hopelessness
- signs of depression - low mood, tearfulness or a lack of motivation or interest.
What are the causes of self-harm?
Common causes of self-harm for both autistic and non-autistic people can include:
- underlying mental health conditions such as depression and anxiety
- struggling with stress and worries
- trauma and difficult experiences (such as relationship breakdown, job loss, or illness);
- being around others who self-harm.
The reasons why autistic people self-harm can be different to non-autistic people. Daily life can be more challenging for autistic people. They may experience differences in understanding social situations and relationships. They may be misunderstood or not accepted by non-autistic people. This can lead to social isolation, rejection and loneliness, possible causes of self-harm.
Other reasons can include:
- sensory differences – trying to regulate/manage sensitivity to sound, light, texture and touch
- difficulties recognising, managing and regulating emotions (alexithymia)
- difficulties with transition, for example, changes at school, home or work
- increased likelihood of co-occurring mental health conditions.
What is the difference between self-harm and self-injurious behaviour?
Some autistic people may hurt themselves in various ways, such as banging their head on surfaces, biting their hands or arms or pulling their hair. This is known as self-injurious behaviour. Harm is not the intent. It is the result of an attempt to regulate or express immediate physical pain or discomfort, or communicate a particular need.
Self-harm is intentionally causing physical pain or harm to yourself, often as an attempt to manage difficult emotions or distress. It doesn’t necessarily mean that someone wants to end their life, and can also be called non-suicidal self-harm (NSSI).
How common is self-harm for autistic people?
Self-harm can affect anyone. Some studies suggest that:
- autistic people are more likely to self-harm than non-autistic people
- autistic women are more likely to self-harm than autistic men.
Self-harm and suicide
Self-harm can be a coping mechanism, without suicidal intent. However, evidence shows that those who have self-harmed in the past have a higher risk of suicidal thoughts and attempts.
Self-harm carries significant risks to your physical and emotional wellbeing. If you are self-harming or have thoughts about harming yourself, it is important to seek professional support and treatment as early as possible.
How do I get help for self-harm?
In an emergency you should call 999. If there is no immediate risk to life, and for non-urgent support, you should speak to a GP.
Your GP will be able to assess you and discuss treatment options. The GP will also check any injuries you have concerns about.
Treatment and support for self-harm usually involves talking therapies and can involve medication. Your GP may also refer you for further assessment with a community mental health team. A full assessment of needs and risks is recommended.
Support should address the underlying causes of the self-harm.
Therapies
You might find it helpful to go for counselling. You can access this through your GP or privately. There are various types of talking therapies suggested for self-harm, such as cognitive behavioural therapy (CBT). This can be effective for some autistic people if adapted to their needs.
Other recommended therapies include:
- mindfulness-based cognitive therapy (MBCT)
- dialectical behaviour therapy (DBT)
- psychodynamic therapy.
Some autistic people have found that CBT helps them to understand why they self-harm and how to reduce it. It does this by:
- improving self-esteem and confidence
- tackling self-criticism
- teaching practical strategies to cope with difficult feelings.
Other autistic people have found occupational therapy useful in regulating sensory differences that may be related to self-harm.
Ideally, all treatments should be delivered by a professional with a good understanding of autism. More importantly, support should be adapted to a person’s specific needs to make it accessible and effective. Visit our Seeking help with mental health page for more advice.
In England, there is statutory guidance that states autistic adults should have support adapted to their needs if they have a mental health difficulty.
Search our Autism Service Directory for details of counsellors and therapists in your area with experience of working with autistic people.
Medication
Medication is not recommended as a treatment to reduce self-harm. However, you may be offered medication, such as anti-depressants, to treat underlying depression or anxiety. Although guidelines consider antidepressants are generally useful and safe, there is very little research into whether they help treat depression in autistic people. Existing research suggests autistic people may be more likely to experience side effects such as drowsiness, irritability and reduced activity.
Antidepressants should be carefully considered and closely monitored by a medical professional.
Strategies and advice
Some strategies you could try include:
- talk to trusted friends or family about your concerns
- learn to recognise triggers – including keeping a diary to help you understand what feelings might lead you to self-harm
- wait before self-harming – gradually build up the gaps between each period of self-harm (any self-harm carries a risk to your physical health)
- learn techniques to help manage and regulate emotions (such as calming exercises, writing down feelings and distraction)
- find out about mental health and wellbeing – including help for stress, anxiety and depression.
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Discovering that your child is self-harming can be very upsetting. It is important that you get some help and support too.
You might find it helpful to contact self-harm or mental health helplines for some advice on how to support your child.
Here is some advice that may also help. Try to:
- show support, and to be non-judgemental
- ask your child how they would like to be supported
- relate to them as a person, not just their self-harm
- have empathy and understanding about what they are doing
- consider and address what might be causing any underlying distress (for example, the school environment or social situations)
- let them be in control of their decisions, but get them medical attention if needed
- encourage them to speak to a GP or a free listening service about self-harm
- remind them of their positive qualities and things they do well
- encourage open and honest communication
- remove access to items that might be used to self-harm
- with their permission, discuss their use of social media (they may be subject to cyberbullying and/or feel social pressures)
- discourage online content which appears to promote self-harm.
Things to avoid include:
- forcing them to change what they are doing
- acting or communicating in a way that threatens to take control away
- ignoring injuries or overly focusing on them
- labelling self-harm as 'attention seeking'.
Autistic people’s experience of self-harm
Please note: the following has content that you may find distressing.
- Seeing double, understanding autism (2021): Autism and self-harm
- Aucademy (2021): Harmful stims and self-harm with David Gray-Hammond
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- Campaigns
- Policy
- Training and conferences
- Autism Services Directory: for services and support
- Branches: offering support, information and social activities for autistic adults, children and their families in their local areas
- Community: our online community is a place for autistic people and their families to meet like-minded people and share their experiences
- Good practice guide: for professionals delivering talking therapies for autistic adults and children
- Guide to asking for reasonable adjustments
- Autism and self-harm
- Deliberate self-harm in autistic children and young people
- Self-harm and autism: an interview with Lucy Sanctuary
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- Self-injury Support - information and support for women and girls affected by self-harm. Call 0808 800 8088 or 0780 047 2908 (text support)
- LifeSIGNS - a user-led self-harm information and support network
- The Samaritans – a free helpline for anyone struggling to cope Phone 116 123, or email: jo@samaritans.org for a reply within 24 hours
- Text "SHOUT" to 85258 to contact the Shout Crisis Text Line, or text "YM" if under 19
- If under 19, call 0800 1111 to talk to Childline. The phone number will not appear on phone bills.
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- Calm Harm - a free app for children and young people
Email, text and forum support is offered by self-harm services, including:
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ResearchAuthor: Culpin I. et al (2018)
Title: Autistic traits and suicidal thoughts, plans, and self-harm in late adolescence: population-based cohort study
Source: Journal of the American Academy of Child & Adolescent Psychiatry Vol. 57(5), pp. 313-320.e6Author: Camm-Crosbie L. et al (2019)
Title: ‘People like me don’t get support’: autistic adults’ experiences of support and treatment for mental health difficulties, self-injury and suicidality
Source: Autism. Vol. 23(6), pp. 1431-1441Author: Maddox et al, (2017)
Title: Untended wounds: non-suicidal self-injury in adults with autism spectrum disorder
Source: Autism. Vol. 21(4), pp. 412-422Author: Moseley et al (2019)
Title: A 'choice', an 'addiction', a way 'out of the lost': exploring self-injury in autistic people without intellectual disability
Source: Molecular Autism. Vol. 10, p. 18Author: Licence L. et al. (2020)
Title: Prevalence and risk-markers of self-harm in autistic children and adults
Source: Journal of Autism and Developmental Disorders. Oct 26 [Epub ahead of print]Author: Wilkinson J. (2015)
Title: Supporting individuals with autism who self-harm: attributions, emotional response and willingness to help.
Source: Good Autism Practice. Vol. 16(1), pp. 61-69Author: Oliphant et al, (2020)
Title: What is the Prevalence of Self-harming and Suicidal Behaviour in Under 18s with ASD, With or Without an Intellectual Disability?
Source: Journal of Autism and Developmental Disorders, Volume 50 (10) – Oct 3, 2020Author: Hosozawa, et al (2020)
Title: Timing of diagnosis, depression and self-harm in adolescents with autism spectrum disorder
Source: Autism , Volume 25 (1)Author: Jokiranta-Olkoniemi, et al, (2020)
Title: Risk for Premature Mortality and Intentional Self-harm in Autism
Source: Spectrum Disorders Journal of Autism and Developmental Disorders , Volume OnlineFirst – Nov 2, 2020Author: McDonnell et al, (2019)
Title: An Exploratory Analysis of Predictors of Youth Suicide-Related Behaviors in Autism Spectrum Disorder: Implications for Prevention Science
Source: Journal of Autism and Developmental Disorders, Volume OnlineFirstAuthor: D’Alò et al, (2021)
Title: Impact of antipsychotics in children and adolescents with autism spectrum disorder: a systematic review and meta-analysis
Source: Health and Quality of Life Outcomes , Volume 19Author: Moseley et al, (2020)
Title: Links between self-injury and suicidality in autism
Source: Mol AutismAuthor: Hedley et al, (2018)
Title: Understanding depression and thoughts of self-harm in autism: A potential mechanism involving loneliness
Source: Research in Autism Spectrum DisordersAuthor: McManus S et al (2019)
Title: Suicide and self-harm in Britain researching risk and resilience using UK surveys
Source: NatCentProfessional resources
Author: Karim, K and Baines, S (2016)
Title: Deliberate self-harm in autistic children and young people
Source: National Autistic Society (Professional Practice article)
Author: Sanctuary, L; (2017.a.)
Title: Autism and self-harm
Source: National Autistic Society (Professional Practice article)Author: Sanctuary, L; (2017.b.)
Title: Self-harm and autism: an interview with Lucy Sanctuary
Source: National Autistic Society (Professional Practice article)Author: Young Minds (accessed August 2021)
Title: Self-harmAuthor: NICE (2011)
Title: Self-harm in over 8s: long-term management. Clinical guidance (C133)Author: Autism West Midlands (2016)
Title: Autism and self-injury
Source: Autism West MidlandsAuthor: Mental Health Foundation (accessed august 2021)
Title: The truth about self-harm
Source: Mental Health FoundationAuthor: NHS (accessed August 2021)
Title: Self-harm
Source: NHSAuthor: Autistica (accessed August 2021)
Title: Autism and self harm
Source: AutisticaAuthor: ICD-11 (accessed August 2021)
Title: classification of Intentional self-harmAuthor: MIND (accessed August 2021)
Title: Self-harmPersonal accounts
Author: Jubaris (2019)
Title: Bleeding: An Insider’s Account
Source: Spectrum Life Magazine
Author: Sam (2017)
Title: Autism and Mental Health: Proving Everyone Wrong
Source: Young MindsAuthor: Seeing double, understanding autism (accessed August 2021)
Title: Autism and self-harm
Source: Seeing double, understanding autismAuthor: SwedishRebornMom (2012)
Title: My life story – self harm, Asperger's anxiety, suicide attempts
Source: YouTubeAuthor: Allen (2012)
Title: Autism and self-injurious behaviours
Source: Thinking person’s guide to autismAuthor: Isaac (2017)
Title: Autism, processing emotions and alexithymia
Source: Paul Isaac’s blog: Autism from the insideAuthor: Outdoor prescription and me (2017)
Title: Self-harm and me
Source: Outdoor prescription and meAuthor: Aucademy (2021)
Title: Harmful stims and self-harm with David Gray-Hammond
Source: YouTubeAuthor: IndieAndy (2018)
Title: My self-harm story…(Mental Health Awareness week 2018)
Source: YouTube
Related advice and support
Last reviewed: March 20221
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