Bipolar disorder
Bipolar disorder is a mental health condition that affects how you feel. Your mood can change dramatically between feeling depressed and low, and feeling excited or agitated. Bipolar disorder can have a significant impact on your life, but it can be managed with treatment.
What is bipolar disorder?
The NHS define bipolar disorder as:
“a mental health condition that affects your moods, which can swing from one extreme to another. It used to be known as manic depression. Bipolar usually means a person experiences episodes of mania and depression.”
Mania can make you feel full of energy, over-confident, excitable and on edge. In contrast, depression can make you feel down, tired, tense and cause you to withdraw. Everyone will experience different cycles or durations of these mood states.
You might also experience:
- hypomania (not as severe or long-lasting as mania)
- mixed episodes (experiencing both mania and depression at the same time, or in quick succession)
- psychotic symptoms (experiencing delusions, such as paranoia or hallucinations, such as hearing voices).
Psychosis is more common during manic episodes, but can happen during depressive episodes too. Not everyone with a diagnosis of bipolar disorder experiences psychosis.
Bipolar disorder usually develops in a person’s late teens (15-19 years old). It is rare for someone to develop it after the age of 40.
What causes bipolar disorder?
The exact cause of bipolar disorder is unknown but potential causes include:
- family history of bipolar disorder
- brain chemistry
- childhood trauma
- extreme stress, such as relationship breakdown.
Autism and bipolar disorder
We do not know how many autistic people have bipolar disorder. Some studies estimate between 5 and 7%, compared with an estimated rate of 1% in the general population. More research is needed.
How might bipolar disorder affect me?
It is thought that bipolar disorder affects both autistic and non-autistic people in similar ways. It may be distressing and can have a significant effect on your day-to-day life.
If you have bipolar disorder you may experience:
- thoughts of self-harm and suicide
- difficulty with sleeping and eating
- strained relationships
- a change in personality
- a desire to engage in risky behaviour
- shame or loss of memory (following a manic or hypomanic episode).
While it is common to have stable periods between episodes, a severe episode may need crisis support such as admission to hospital.
Treatment and support are essential to help manage bipolar disorder.
How do I get help and support?
If you think you might have bipolar disorder then it is important to get help.
Your GP will assess your symptoms. If your GP thinks you may have bipolar disorder, they will usually refer you for further assessment and treatment with a mental health specialist or team.
You will be asked some questions to get a better understanding of your symptoms and what treatments might be best for you. These might include:
- What are your symptoms?
- How many symptoms do you experience?
- How long do your manic or depressive episodes last?
- How many episodes have you had and how frequently do they occur?
- What impact do your symptoms have on your life?
- What is your family history of mental health conditions?
Identification and assessment issues
Autistic people may face additional barriers to receiving a diagnosis of bipolar disorder due to a lack of diagnostic tools adapted specifically for use with autistic people. Additional issues include:
- existing tools may not be appropriate for individuals who have difficulties identifying and communicating emotions
- existing tools may be over-reliant on the reports and observations of parents or carers
- there may be issues of ‘diagnostic overshadowing’ – that is, some autistic characteristics may mask or be similar to bipolar symptoms, for example talking rapidly without pause, and a change in mood as a result of a change in routines
- misdiagnosis of other conditions such as schizophrenia, psychosis and borderline personality disorder.
There are NICE guidelines that professionals should follow for the assessment and treatment of bipolar disorder. If you feel you have not received the correct diagnosis, speak to your GP about your concerns.
Treatment
Treatment for bipolar disorder is the same for autistic and non-autistic people. The support offered may vary depending on where you live. In England, there is statutory guidance for adults that states autistic people should have support adapted to their needs if they have a mental health condition.
The National Institute for Clinical Excellence (NICE) recommend both psychological therapies and medication for treating bipolar disorder.
Therapies
You can access counselling or therapy through your GP or privately. Therapies such as cognitive behavioural therapy (CBT) and individual therapy are recommended for bipolar disorder.
Research suggests that CBT can be effective for some autistic people, if adapted appropriately.
Ideally, someone with a good understanding of autism should deliver all treatments and therapies. Most importantly, to be accessible and effective, support should be adapted to a person’s specific needs. Visit our Seeking help with mental health page for more advice.
Search our Autism Service Directory for details of counsellors and therapists in your area who have experience of working with autistic people.
Strategies for managing bipolar disorder
Strategies that might be useful include:
- keeping a mood diary (to help identify early signs or triggers of episodes)
- practicing calming activities
- following routines (including regular meals and sleep)
- engaging support networks, such as friends and family.
“With mania and autism, it is important to be careful you are taking care of yourself, as it is VERY easy to not eat, sleep, or take care of yourself”
Medication
NICE recommends certain types of medications initially to help manage bipolar disorder symptoms, specifically antipsychotic medication including:
- haloperidol
- olanzapine
- quetiapine
- risperidone.
NICE guidance states that if antipsychotic treatment does not work, then lithium or valproate (where lithium is ineffective) may be used. People who may become pregnant should not take valproate.
Antidepressants may also be recommended for those experiencing moderate or severe bipolar depression. Although antidepressants are generally considered useful and safe, there is very little research into whether they help treat depression in autistic people. The available research suggests that autistic people may be more likely to experience side effects such as drowsiness, irritability and reduced activity.
Any medication should be carefully considered and closely monitored by a medical professional.
Electroconvulsive therapy (ECT)
NICE guidelines state that ECT may be used as a treatment but only if:
- other treatments have not worked
- the condition is life-threatening
- there is prolonged and severe mania.
NICE recommend that ECT is only used to get rapid and short-term improvement of severe symptoms.
Bipolar disorder and driving
If you have bipolar disorder, it may affect your driving. You must inform the Driver and Vehicle Licensing Agency (DVLA) of your diagnosis. A number of conditions (listed on the Government website) must be met – in addition to passing a driving test – for a driving licence to be issued.
Autistic people’s experiences of bipolar disorder
"I’ve spent most of the last decade becoming reasonably competent at managing the condition, through a combination of medication, various talking therapies, mindfulness, and, possibly most important of all, keeping a daily mood diary."
"It is important to recognise your own internal symptoms and feelings that surround manic episodes and try to catch them before they get out of control. … There are a lot of nuances to bipolar, as there is to any mood disorder. We need to have more proper representation."
"I always thought that mania was supposed to be something ‘up’ and exciting. It isn’t. It’s full of very grumpy irritability and short temper. Hypo-mania gets me feeling agitated while full-blown mania, for me, is filled with scary delusions."
– Joel Ashton-Fogle, The art of autism
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- Autism Services Directory: for services and support
- Branches: offering support, information and social activities for autistic adults, children and their families in their local areas
- Community: our online community is a place for autistic people and their families to meet like-minded people and share their experiences
- Good practice guide: for professionals delivering talking therapies for autistic adults and children.
- Guide to asking for reasonable adjustments
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- NHS – Bipolar disorder
- Mind – Bipolar disorder
- Bipolar UK
- Samaritans
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Research
Author: Lai, MC. et al (2019)
Title: Prevalence of co-occurring mental health diagnoses in the autism population.
Source: Lancet Psychiatry 6, 819-29Author: Croen, L. et al (2015)
Title: The health status of adults on the autism spectrum
Source: Autism, 19 (7), 814-823Author: Schalbroeck, F. et al (2019)
Title: Risk of non-affective psychotic disorder or bipolar disorder in autism spectrum disorder: a longitudinal register-based study in the Netherlands
Source: Psychological Medicine, 49(15), pp. 2543-2550.Author: Masi, G. (2020)
Title: Suicidal ideation and suicidal attempts in referred adolescents with high functioning autism spectrum disorder and comorbid bipolar disorder: a pilot study
Source: Brain Sciences, 10(10), Oct 17Author: Dunalska, A. et al. (2020)
Title: Comorbidity of bipolar disorder and autism spectrum disorder – review paper
Source: Psychiatria Polska. 1(11), NovAuthor: Vannucchi, G. et al (2014)
Title: Bipolar disorder in adults with Asperger׳s Syndrome: a systematic review
Source: Journal of Affective Disorders, 168, pp. 151-60Author: Sapmaz, D. et al. (2018)
Title: The Clinical Features of Comorbid Pediatric Bipolar Disorder in Children with Autism Spectrum Disorder
Source: Journal of Autism and Developmental Disorders. 48(8)Author: Selten, J-P et al, (2015)
Title: Risks for Nonaffective Psychotic Disorder and Bipolar Disorder in Young People With Autism Spectrum Disorder
Source: JAMA Psychiatry. 72(5), pp.483-9Authors: Borue, X. et al. (2016)
Title: Longitudinal Course of Bipolar Disorder in Youth With High-Functioning Autism Spectrum Disorder
Source: Journal of the American Academy of Child and Adolescent Psychiatry. 55(12). pp. 1064-1072Author: Hurwitz R et al (2012)
Title: Tricyclic antidepressants for autism spectrum disorders (ASD) in children and adolescents
Source: Cochrane Database of Systematic Reviews. Issue 3. Art. No.: CD008372Author: Williams K. et al. (2013)
Title: Selective serotonin reuptake inhibitors (SSRIs) for autism spectrum disorders (ASD)
Source: Cochrane Database of Systematic Reviews. Issue 8. Art. No.: CD004677.Author: Chandrasekhar T., Sikich L. (2015)
Title: Challenges in the diagnosis and treatment of depression in autism spectrum disorders across the lifespan
Source: Dialogues in Clinical Neuroscience. Vol. 17(2), pp. 219-227Professional articles
Author: NICE (2020)
Title: Bipolar disorder: assessment and managementAuthor: NICE (2009)
Title: Guidance on the use of electroconvulsive therapyAuthor: NHS (accessed 2021)
Title: Bipolar disorderAuthor: Mind
Title: Bipolar Disorder, (2018)Author: Mohammad Ghaziuddin and Neera Ghaziuddin (2020)
Source: Autism Spectrum Disorders Across the Lifespan Part 2 (book chapter available online)Author: Dr Emily Jackson, Dr Eleanor Smith and Dr Aditya Sharma (2021)
Source: The Association for Child and Adolescent Mental Health (ACAMH)
Title: Mood Disorders and ASD: What not to missAuthor: ICD 11 (access 2021)
Title: Bipolar or related disordersAuthor: NICE guidance (2020)
Title: Autism spectrum disorder in adults: diagnosis and managementAuthor: Royal College of Psychiatrists (2014)
Title: The psychiatric management of autism in adultsLived experience
Title: Bipolar, anxiety & chronic conditions
Source: Liminal Nest, Me Decoded (2018)Title: Evolving Understanding
Source: Finally knowing me: an autistic life (2017)Title: I had an epiphany..
Source: Autism Unfurling (2016)Title: Ableism in Society – Autism and Mental Illness
Source: Autism Unfurling (2018)Title: “I don’t know what to do” – A parent’s dilemma
Source: Autism Unfurling (2016b)Title: Autism and Psychiatric Medication: Caution Advised
Source: Kit Mead (2018)Title: Misdiagnosed girl (autism)
Source: Purple Ella (2015)Title: How To Get Diagnosed #ActuallyAutistic in Just 26 Years
Source: Johnny Profane (2019), NeuroclasticTitle: The Duelling Manifestation of a Duel Diagnosis
Source: Joel Ashton-Fogle, The Art of Autism (2020)Title: Oops, it’s Bipolar
Source: Living with Autism (2020a)Title: Benjamin MD (Multiple Diagnosis)
Source: (Living with Autism (2020b)
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