Autistic women and girls
More women and girls than ever before are discovering that they are autistic. Many had been missed or misdiagnosed due to outdated stereotypes about autism. But that is slowly changing.
In the past, it was assumed that autistic people were overwhelmingly men and boys, and only very rarely women and girls. This is wrong. There are many women, girls and non-binary people on the autism spectrum.
Although we now know much more about the experiences of autistic women and girls, society's understanding of autism has been limited by outdated stereotypes and incorrect assumptions. Although autism research and professional practice are slowly catching up to the realities of life for autistic women and girls, many barriers to diagnosis and support remain.
Does autism present differently in women and girls?
It is important that autistic women and girls receive a diagnosis (or recognise that they are autistic) so they can understand themselves and access support. However, because of stereotyped ideas about what autism looks like and who can be autistic, many autistic women and girls struggle to get a diagnosis, receive a diagnosis late in life or are misdiagnosed with conditions other than autism.
Autistic characteristics in women and girls may differ from those of other autistic people. They might seem to have fewer social difficulties than autistic men and boys, but this could be because they are more likely to 'mask' their autistic traits (though the stress of doing so can result in anxiety and overwhelm). At school, autistic girls may be more likely to be part of a friendship group and this could be a reason that teachers don't notice their differences. They may also be missed if their academic achievement masks difficulties they are facing in other areas.
Some of the core characteristics of autism are having ‘repetitive behaviours’ and highly-focused interests. Stereotyped examples of these include rocking backwards and forwards, and a fascination with trains. However, in autistic women and girls these behaviours and interests may be similar to those of non-autistic women and girls, such as twirling hair and reading books, and as such may go unnoticed despite the greater intensity or focus typical for autistic people.
Doctors and other healthcare professionals can lack knowledge about how autism may present differently in women and girls. This means women and girls may be misdiagnosed with mental health issues or their autistic traits may be missed amid the symptoms of co-occurring conditions. Some tools used to diagnose autism are designed to identify autistic characteristics that may be more common in autistic men and boys. This means the process may not be as sensitive to characteristics more commonly found in autistic women and girls.
In November 2022, NAS launched ‘Now I Know’, a campaign highlighting the experiences of late-diagnosed autistic women and non-binary people from across the country.
The campaign was photographed by autistic photographer Alex Heron, who works at Rankin Studio. You can watch short films or read longer interviews with the six people featured in the campaign. A series of additional interviews will be published at regular intervals sharing the stories of autistic women and non-binary people who responded to the #NowIKnow campaign on social media.
Stories from the Spectrum: autistic women
Many of the autistic women we’ve spoken to have talked about getting a late diagnosis, or have had difficulty getting the support they need.
As part of our Stories from the Spectrum series, we interviewed several women and girls, who shared their experiences with us.
"I feel autistic women are more likely to be described as ‘anxious’ and an autism diagnosis overlooked, since it can challenge gender stereotypes."
Sara Gibbs, autistic comedy writer, told us: "I think there is a lack of understanding of how autism can present in girls, who are often socialised differently."
Charl Davies, autistic tattoo artist, said: "I find that being a female I am expected to behave a certain way to fit in socially which is why I have spent so much time masking."
Dr Camilla Pang, autistic scientist and author, explained: "I feel autistic women are more likely to be described as ‘anxious’ and an autism diagnosis overlooked, since it can challenge gender stereotypes."
Dr Kate Fox, autistic poet and comedian, said: "I don’t think there’s an inherent difference between autistic men and women. What there is a difference in, is how society treats and socialises males and females."
Are men more likely to be diagnosed as autistic than women?
Studies and statistics
- Various studies suggest that the ratio of autistic males to females ranges from 2:1 to 16:1. The most-up-to-date estimate is 3:1.
- In Leo Kanner's 1943 study of a small group of autistic children, there were four times as many boys as girls.
- Lorna Wing (renowned psychiatrist and co-founder of our charity's first diagnosis centre) found in her 1981 paper on autism and sex ratios in early childhood, that among people with a diagnosis of Asperger syndrome (as it was called at the time) there were 15 times more men and boys than women and girls, while in autistic people with learning difficulties, the ratio of men and boys to women and girls was closer to 2:1.
- In a much larger 1993 study of Asperger syndrome in mainstream schools in Sweden, Ehlers and Gillberg found a boy to girl ratio of 4:1.
- Brugha's 2009 survey of adults living in households throughout England found that 1.8% of men and boys surveyed had a diagnosis of autism, compared to 0.2% of women and girls.
- In 2015, the ratio of men to women supported by the National Autistic Society’s adult services was approximately 3:1, and the ratio of boys to girls in our charity’s schools was approximately 5:1.
- In a 2017 study, Loomes and other researchers analysed existing prevalence studies and found that the male-to-female ratio was nearer 3:1.
Why are more men diagnosed as autistic?
We don’t know exactly why more men and boys are diagnosed as autistic than women and girls. It is clear that many autistic women and girls are missed or misdiagnosed. It was previously thought that there were many more autistic men than women, but estimates of the ratio have gotten closer and closer over time.
Many theories to explain the diagnosis gap have been put forward, but none have been conclusively proven. Some of the theories are:
Please note:
Research and knowledge about autism changes constantly. Some of these theories may not reflect how we think about autism today.
- a potential 'female autism phenotype' – in other words, autistic women and girls have characteristics that don’t fit with the traditional profile of autism
- autism assessments are less sensitive to autistic traits more commonly found in women and girls
- women and girls are more likely to ‘mask’ or camouflage their differences
- autistic traits in girls are under-reported by teachers
- a range of biological and environmental factors may mean men and boys have a higher prevalence of autism
- the 'extreme male brain' theory of autism, which focuses on the effects of foetal testosterone on brain development
Critiques of the 'extreme male brain' theory
Books by autistic women and girls
The following books were suggested by NAS staff. Inclusion on this list should not be considered an endorsement by NAS as these books have not been reviewed through the same rigorous process as our advice and guidance content sources.
Non-fiction
- Autism and masking: how and why people do it, and the impact it can have, Helen Ellis, with Dr Felicity Sedgewick and Dr Laura Hull
- Safeguarding autistic girls: strategies for professionals, Dr Carly Jones MBE
- Spectrum women, Barb Cook and Dr Michelle Garnett (editors)
- Supporting spectacular girls: a practical guide to developing autistic girls' wellbeing and self-esteem, Helen Clarke
- Taking off the mask: practical exercises to help understand and minimise the effects of autistic camouflaging, Hannah Belcher
- The independent woman's handbook for super safe living on the autistic spectrum; The autism-friendly guide to periods; The autism-friendly guide to self-employment, Robyn Steward
- Women and girls with autism spectrum disorder, Sarah Hendrickx
Autobiography
- Drama queen: one autistic woman and a life of unhelpful labels, Sara Gibbs
- Odd girl out: an autistic woman in a neurotypical world, Laura James
- Travelling by train: the journey of an autistic mother, Laurie Morgan
Fiction
- A Kind of Spark, Elle McNicoll
- Can You See Me?, Libby Scott and Rebecca Westcott
Links, resources and article sources
-
- Autism Services Directory: for services and support
- Branches: offering support, information and social activities for autistic adults, children and their families in their local areas
- Community: our online community is a place for autistic people and their families to meet like-minded people and share their experiences
-
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Title: Autistic pregnancy: how I coped
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Title: Autism and Relationships Part 1: Friendships | AUTISM IN GIRLS
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Title: 9 Childhood Autistic Traits in Girls | EARLY SIGNS OF AUTISM
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Title: Autism and Relationships Part 2: Romantic Relationships | AUTISM IN GIRLS
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Title: I was Groomed as an Autistic Teen | AUTISM IN GIRLS
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Author: Olivia Hops, 2021f
Title: 10 More Female Autistic Traits | AUTISM IN GIRLS
Source: YouTube
Author: Olivia Hops, 2021g
Title: Autism and Periods (+ Period Underwear Review and My Biggest Meltdown Ever) | AUTISM IN GIRLS
Source: YouTube
Author: Alex, Neurodiversity Foundation, 2022
Title: Autism in Women: How My Late Diagnosis Allowed Me to Fully Accept Myself (@potentia.neurodiversity)
Source: YouTube
Author: Mom on the Spectrum, 2021
Title: PARENTING WITH AUTISM: The Final Straw that Led Me to Seek Diagnosis // Autism in Women
Source: YouTube
Author: Mom on the Spectrum, 2021
Title: Periods and Autism // 9 Hacks for Managing PMS // Autism in Women
Source: YouTube
Author: Mom on the Spectrum, 2022
Title: 16 Overlooked Autistic Traits in Females / AFAB Individuals
Source: YouTube
Author: Agony Autie, 2018
Title: Autistic Women & Girls | What's That?!
Source: YouTube
Author: Purple Ella, 2017c
Title: AUTISM AND PMT|Purple Ella
Source: YouTube
Author: Autmazing, 2020
Title: Autism, Girls, and Friendship| My Personal Experience
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Author: Autmazing, 2018a
Title: My Experience as an Autistic Mom of Autistic Kids: The Invisible Years
Source: YouTube
Author: Autmazing, 2018b
Title: How Autism Has Made Me A Different Sort of Mom (and why that isn't a bad thing)
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Author: Hollie Mabbott, 2021a
Title: autism and girls//difference between autism in girls and autism in boys
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Author: Hollie Mabbott, 2021b
Title: AUTISM in females SIGNS//life as an AUTISTIC GIRL
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Author: Hollie Mabbott, 2021c
Title: my childhood traits as an AUTISTIC GIRL//living with autism as a child
Source: YouTube
Author: Hollie Mabbott, 2021d
Title: living with AUTISM as a GIRL//Why do autistic girls MASK?
Source: YouTube
Author: Becoming Autism, 2022
Title: Autistic and Pregnant | Managing The First Trimester
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Author: neurodivergent me, 2021a
Title: Autism traits in girls and women⎥Autistic traits I struggle the most with⎥#actuallyautistic
Source: YouTube
Author: neurodivergent me, 2021b
Title: Pregnant & Autistic⎥1st trimester update⎥My experience being pregnant as an autistic woman
Source: YouTube
Author: neurodivergent me, 2021c
Title: 8 autism traits in girls & women, explained by an autistic woman⎥AUTISM IN GIRLS
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Author: Ruby Woods, 2020
Title: My Autism Diagnosis Journey - Female With ASD
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Author: Erin R, 2022
Title: Adult Female Autism Diagnosis: My Experiences
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Author: Meghan Levaughn, 2021
Title: Unmasked: Living With PMDD & Autism
Source: International Association for Premenstrual Disorders
Author: A Is For Aoife Not Autism, 2021a
Title: Autism and Periods
Source: blog
Author: A Is For Aoife Not Autism, 2021b
Title: Autism and Puberty
Source: blog
Author: Sara King, 2021
Title: My experiences of pregnancy, birth and motherhood as an autistic mum
Source: Royal College of midwives
Author: Hannah Clarke, (accessed Aug 2022)
Title: What is it like to be a woman on the spectrum?
Source: Neurodiverging
Author: Danielle, (accessed Aug 2022)
Title: Episode 11: A Struggling, Undiagnosed Autistic Girl in the 1990s
Source: Neurodiverging
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Title: Autistic And Pregnant
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Author: April Griffin, 2016
Title: Gender Identity Issues And Females On The Spectrum
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Author: Alicia Trautwein, 2020
Title: Autistic and pregnant
Source: Motherfigure
Author: Rhi Lloyd-Williams, 2021
Title: AUTISM INTERVIEW #170: RHI ON AUTISTIC PREGNANCY, CHILDBIRTH, AND MOTHERHOOD
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Author: Alicia Trautwein, 2020
Title: The Challenges of Being an Autistic Mother with Autistic Children
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Author: Lucy Parker, 2019
Title: The truth about being autistic and a mother
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Author: Lana Grant, 2017
Title: Autistic Women, Pregnancy and Motherhood – Lana Grant
Source: Spectrum Women
Author: Linda Hollenberg, 2021
Title: The Autistic Doula: Navigating the sensory challenges of motherhood
Source: Reframing Autism
Author: Autistic Women Everywhere, accessed September 2022
Title: AUTISTIC WOMEN EVERYWHERE
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Author: Sarah Vanis, accessed September 2022
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Author: Vanessa Hughes, accessed September 2022
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Author: Janey Klunder, accessed September 2022
Title: AUTISTIC WOMEN EVERYWHERE
Source: Autistic Women Everywhere
Author: Esther Whitney, 2022
Title: Personal Account: Breastfeeding as an Autistic Parent
Source: Autistic Parents UK
Author: Ruth Jenks, 2021
Title: Relationships with Healthcare Professionals (HCPs) during pregnancy, birth and the postnatal period
Source: Autistic Parents UK
Author: Keara Farnan, 2018
Title: Why It's Hard to Find a Boyfriend as an Autistic Woman
Source: The Mighty
Author: Nicole Seaward, 2021
Title: Autistic Womxn - Relationships
Source: Grit and Flow
Author: Hope Whitmore, 2015
Title: “Are You Angry With Me?”: Dating as an Autistic Woman
Source: The Toast
The Spectrum magazine
Explore one of the UK's largest collections of autistic art, poetry, and prose. The Spectrum magazine is created by and for autistic people, and is available both online and in print.
Autism and gender identity
We look at the connection between autism and gender identity, and hear stories from non-binary and transgender autistic people.
Related training
Understanding women and girls
Gain a comprehensive understanding of autism in women and girls, exploring how characteristics may differ at different stages of life.
Women and girls on the autism spectrum
This E-learning module aims to support professionals to identify autistic women and girls.
Related professional practice
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