Service categories: Information, advice and advocacy

Service URL: https://www.pwsa.co.uk/

Prader-Willi syndrome is a complex genetic disorder, which is present from birth. The Prader-Willi Syndrome Association (UK) is the only organisation in the UK which is dedicated to supporting people with Prader-Willi syndrome (PWS), their families, carers, and the professionals who work with them. It offers a range of services to help families, people with PWS, and professionals in all fields. These include: A wide range of free leaflets on PWS and other publications; Friendly telephone help and support; In-house training; Welfare benefits advice; Representation at case conferences and tribunals; Quarterly News magazine (members only); Special holidays (members only); Reference library; Access to medical experts on PWS; Conferences and events.

Aimed at: Adolescent , Adult , Adult sibling, Child , Child/adolescent sibling, Parent/carer of a child, Parent/carer of an adult, Partner, Professional, Volunteer

Other specialisms: Challenging behaviour, Learning disability