Type of service: Family support and information services

Website: http://www.angelmanuk.org

ASSERT Trustee's are all relatives of children with Angelman Syndrome. We have set ourselves the objective's: to produce a regular newsletter; to provide an information pack for doctors to give to families of those newly diagnosed with AS; to maintain a 24 hour, seven day a week telephone support line; to forge links with similar AS organisations overseas; to hold regional meetings in different locations throughout the year; to establish a national register of families indicating those willing to be a point of contact for families of those newly diagnosed with AS; to fund research into Angelman Syndrome; and to raise public awareness of Angelman Syndrome by means of articles for journals and magazines.

Aimed at: Parent/carer of a child, Parent/carer of an adult, Professional

Gender: All genders